Multiple council members and public commenters urged the Rare Disease Advisory Council to prioritize legislation and oversight for adult protections and medical accessibility.

Mary raised that adults who have only physical disabilities currently lack an easy route to file abuse/neglect complaints compared with elders or people with intellectual/developmental disabilities; members agreed this gap could be a legislative priority for 2026 and suggested working with Senator Anwar and other legislators. Myrna Watanabe described several episodes in which her husband, a wheelchair user, could not access dental, radiology or nursing‑home care because lifts were unavailable or staff lacked training; she urged RDAC support for legislation requiring lifts or shared equipment plans for multi‑practice buildings. Member discussion focused on combining equipment acquisition with education for staff and possible paths for regulatory versus legislative action.

David (speaker introduced as David Nivran) recommended that RDAC monitor implementation of Public Act 25‑42 (Katie Beckett waiver expansion), requested progress monitoring conversations with DSS on phasing down the waiver waitlist (cited as ~5–6 years), and proposed exploring a small 'compassionate' waiver (approximately 25 seats) for families with terminal pediatric illnesses. A public commenter recounted alleged neglect of a disabled adult in Coventry and urged greater responsiveness from state agencies.

Council members expressed support for elevating accessibility and adult‑protection issues as legislative or oversight priorities in 2026.