The California State Senate adopted Senate Concurrent Resolution 51 on May 5, designating May as Cystic Fibrosis Awareness Month. The resolution was adopted by unanimous roll call (Ayes 38, Noes 0).
Senator Laird, who presented the resolution, described cystic fibrosis (CF) as a chronic, progressive genetic disease with no cure and noted a median life expectancy cited on the floor of about 37 years. She highlighted racial and ethnic disparities in diagnosis and stressed that awareness and access to new therapies can extend life expectancy. The Cystic Fibrosis Research Institute (representatives including Siri Veth) was in the gallery and introduced after adoption.
Why it matters: Sponsors said raising awareness can lead to earlier diagnosis and improved access to care, and they thanked researchers and advocates who work on treatment, education and support for families living with CF.
Outcome: SCR 51 was adopted unanimously; it is a ceremonial recognition intended to increase public awareness and does not create new programs or funding.