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Senate adopts resolution declaring May 2025 Ehlers-Danlos awareness month

April 21, 2025 | Senate, Committees, Legislative, Oregon


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Senate adopts resolution declaring May 2025 Ehlers-Danlos awareness month
The Oregon State Senate on April 21 adopted House Concurrent Resolution 4, designating May 2025 as Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) awareness month.

Senator Bonham, who presented the resolution, said EDS is a group of heritable connective tissue disorders and described barriers patients face in obtaining accurate diagnoses and coordinated care. "Too often, there is more than a decade delay in diagnosis," the sponsor said while quoting peer-reviewed testimony to illustrate diagnostic challenges and the need for broader clinician awareness.

Senator Gelser Blouin, who spoke in support, described personal experience: "One of my children and I both have received this diagnosis over the course of the last 12 months," she said, adding that recognizing the condition helped her family plan and manage symptoms.

The resolution text, as presented on the floor, summarizes that EDS comprises roughly 13 heritable connective tissue disorders, that some forms are rare while hypermobile EDS and HSD may be more common, and that care often requires a multidisciplinary approach. The measure passed on final adoption by a constitutional majority (roll call recorded as 28 ayes, 0 nays, with one excused).

Sponsors asked the resolution to serve primarily as awareness and education; it does not create a statutory program or appropriate funds.

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Scribe from Workplace AI
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