Bexar County is taking significant steps to support families affected by Dravet syndrome, a severe form of epilepsy, following a heartfelt presentation at the Commissioners Court meeting on June 24, 2025. The meeting highlighted the urgent need for awareness and education surrounding this condition, which poses serious health risks, including a high mortality rate for affected children.

A parent shared their personal experience with their child, Bailey, who faces numerous challenges due to Dravet syndrome. The emotional and physical toll on families is profound, as they navigate the complexities of treatment and the constant threat of seizures. With Bailey experiencing a total of 168 seizures since 2019, the need for effective emergency response and understanding from medical professionals is critical.

The parent emphasized the importance of training for emergency physicians and first responders to recognize and respond to Dravet syndrome effectively. They also called for greater collaboration between families and healthcare providers, highlighting the invaluable support received from Dr. Rauschak and her team at Bexar County ESD 2. Their proactive approach has provided families with peace of mind through coordinated care plans.

The meeting concluded with a proclamation aimed at raising awareness for Dravet syndrome, signaling a commitment from local leaders to support affected families. This initiative is seen as a vital step toward fostering understanding, compassion, and support for those living with this challenging condition. As families like Bailey's continue to advocate for better resources and research, the hope for a future cure remains strong.