Bexar County Recognizes June 23 as Dravet Syndrome Awareness Day for Clay Forbes

June 24, 2025 | Bexar County, Texas

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Bexar County Recognizes June 23 as Dravet Syndrome Awareness Day for Clay Forbes

This article was created by AI using a video recording of the meeting. It summarizes the key points discussed, but for full details and context, please refer to the video of the full meeting. Link to Full Meeting

The Bexar County Commissioners Court convened on June 24, 2025, to address several important agenda items, beginning with a significant proclamation recognizing June 23 as Dravet Syndrome Awareness Day. This proclamation was presented in honor of Clay Forbes and highlighted the challenges faced by individuals affected by Dravet syndrome, a severe form of epilepsy that begins in infancy and has no known cure.

Elaine, the president of the Villages of West Creek and a key advocate for awareness, expressed gratitude for the recognition. She shared a personal account of her granddaughter, Bailey, who was diagnosed with Dravet syndrome at just nine months old. Elaine detailed the difficult journey her family has faced, including a lengthy hospital stay and the challenges of managing Bailey's condition with medication.

The proclamation emphasized the importance of public awareness regarding Dravet syndrome, which affects approximately 1 in every 15,700 births and is caused by a mutation in the SCN1A gene. Elaine warned that some common epilepsy medications can exacerbate the condition, leading to prolonged seizures, which can be life-threatening.

The meeting underscored the need for continued support and research into Dravet syndrome, as well as the importance of community awareness to assist families dealing with this challenging disease. The Commissioners Court's recognition of Dravet Syndrome Awareness Day serves as a call to action for the community to support those affected and to advocate for further research into potential treatments.

Converted from Bexar - Commissioners Court - Jun 24, 2025 meeting on June 24, 2025
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