The Joint Committee on Health Care Financing of the Massachusetts Legislature convened on July 1, 2025, to discuss critical issues affecting individuals with disabilities and their families. A significant focus of the meeting was the need for improved support for young adults with autism and other developmental disabilities as they transition to adulthood.

Mara Sullivan, CEO of The Arc of Massachusetts, presented compelling testimony advocating for House Bill 1351 and Senate Bill 871. These bills aim to require MassHealth to cover applied behavior analysis (ABA) for individuals over the age of 21, aligning with the coverage already provided by private insurance. Sullivan emphasized that many young adults with profound autism continue to require these essential services, which help them manage behaviors and gain independence. She highlighted the inequity faced by those reliant on MassHealth, as they lose access to critical support services upon turning 21, despite ongoing needs.

Sullivan also pointed out the broader implications of this policy gap, noting that the lack of available day programs due to workforce shortages exacerbates the challenges faced by young adults with disabilities. She argued that the current system disproportionately impacts lower-income individuals, leading to isolation and regression, which ultimately costs the state more in the long run.

The committee also heard from Christine Stanton, who underscored the importance of recognizing the lifelong responsibilities of caregivers and the need for a system that reflects the realities faced by families. She urged the committee to support the proposed legislation to ensure fairness and compassion for thousands of Massachusetts families navigating these challenges.

The discussions at the meeting highlighted the urgent need for legislative action to address the gaps in support for individuals with disabilities as they transition into adulthood. The committee's next steps will be crucial in determining the future of these proposed bills and the support available to vulnerable populations in Massachusetts.