Senate Resolution 51, introduced by Senator Laird, has officially declared May as Cystic Fibrosis Awareness Month in California. This resolution aims to highlight the challenges faced by individuals living with cystic fibrosis (CF), a chronic and progressive genetic disease that currently has no cure. With a median life expectancy of just 37 years, CF is recognized as the most common fatal genetic disease in the United States.
During the Senate floor session, Senator Laird emphasized the importance of early diagnosis and treatment, noting that advancements in drug therapies can significantly improve the lives of those affected. He pointed out that while CF impacts individuals across all races and ethnicities, people of color often experience delays in diagnosis due to existing healthcare disparities. Raising awareness about CF is crucial for ensuring timely diagnoses and access to effective treatments.
The resolution received unanimous support, passing with 38 votes in favor and none against. Senator Laird acknowledged the presence of advocates from the Cystic Fibrosis Research Institute in the gallery, thanking them for their efforts in promoting awareness and education about this vital health issue.
This declaration not only aims to foster greater understanding of cystic fibrosis but also underscores the ongoing need for research and support services for those affected by the disease. As California observes Cystic Fibrosis Awareness Month, the hope is to inspire action towards better healthcare access and ultimately, a cure.