During the Colorado Senate's recent session, lawmakers gathered to discuss House Joint Resolution 20-510, which recognizes Rare Disease Day. This resolution aims to raise awareness about the challenges faced by individuals and families affected by rare diseases, a topic that resonated deeply with several senators.

Senator Simpson shared a personal story, honoring his late mother who passed away from Amyotrophic Lateral Sclerosis (ALS) at the age of 49. He highlighted the lack of advancements in the diagnosis and treatment of ALS over the past 34 years, emphasizing the emotional toll it has taken on families. "My mom did not get to see her grandkids or great grandkids," he reflected, underscoring the importance of supporting research and awareness for rare diseases.

Senator Judah also expressed his support for the resolution, sharing his own experience with epilepsy. He spoke about the importance of training teachers and administrators to respond effectively to students experiencing seizures. Judah noted that understanding his condition as an "invisible disability" has empowered him to advocate for others facing similar challenges.

The discussions during this session not only highlighted the personal impacts of rare diseases but also emphasized the need for greater awareness and support within the community. As lawmakers continue to address these issues, the hope is to foster a more informed and compassionate environment for those affected by rare conditions.