The Pediatric Hospice Working Group convened on February 25, 2025, to discuss critical developments in pediatric palliative and hospice care in Connecticut. The meeting focused on legislative efforts and the need for a structured program to enhance care for children with serious illnesses.

The session began with a report from a member who had recently met with Senator Anwar and Representative McCarthy Vahey. They discussed the importance of drafting legislative language to be presented to the legislature by the first week of March. This language aims to establish a framework for a new program that would integrate existing palliative and hospice care services specifically for children.

Key discussions highlighted the necessity of further collaboration with the legislature to refine the proposed program. The group acknowledged that while the core principles of palliative and hospice care would remain unchanged, the new program would require clear criteria for determining levels of care and associated payment structures. The aim is to ensure that children receive appropriate services based on their specific needs.

Additionally, the group explored funding options, referencing a model used in Massachusetts that operates through a hub-and-spoke system. This approach would involve state-level management of cases, directing them to local agencies equipped to provide care.

The meeting also included a review of a recent survey, with members seeking clarification on the data presented. The survey results are expected to inform the group's ongoing discussions and planning.

In conclusion, the Pediatric Hospice Working Group is actively working towards establishing a comprehensive program for pediatric hospice care in Connecticut, with plans to engage further with legislative partners and refine their proposals in the coming weeks. The group remains committed to ensuring that children in need receive the highest quality of care tailored to their unique circumstances.