A pivotal discussion on pediatric hospice care funding took center stage during the Pediatric Hospice Working Group Meeting held on February 25, 2025, in Connecticut. Participants emphasized the urgent need for increased financial support to enhance care for children with serious illnesses.

The meeting highlighted the current challenges faced by agencies providing pediatric hospice services, particularly the struggle to compete with out-of-state funding rates. One participant pointed out that over 90% of complex pediatric care cases are Medicaid-funded, yet existing reimbursement rates are insufficient to attract and retain qualified staff. “We know we need pediatric hospice and palliative care in Connecticut,” one member stated, stressing that without adequate funding, agencies cannot maintain the necessary workforce or provide specialized training for end-of-life care.

The conversation also touched on the importance of a child-centric approach in care delivery, with a central repository managed at the state level to coordinate services among ten participating agencies. However, concerns were raised about the effectiveness of current bereavement services, particularly for families who may not have established relationships with hospice providers before needing care.

As the meeting concluded, participants underscored the necessity of including funding recommendations in the group's upcoming report. The consensus was clear: without a comprehensive review of reimbursement rates that considers neighboring states, Connecticut's pediatric hospice care system risks remaining inadequate. The call for action is urgent, as stakeholders seek to ensure that families receive the compassionate care they deserve during critical times.