The Pediatric Hospice Working Group in Connecticut has underscored the critical need for funding to sustain pediatric and palliative hospice care services during its recent meeting. Participants emphasized that without adequate financial support, the future of these essential services remains uncertain.

A key discussion point highlighted the overwhelming reliance on Medicare and Medicaid funding among hospice providers, with many operating at a loss due to the high percentage of Medicaid cases. This financial strain raises concerns about the sustainability of specialized services for children with life-limiting conditions. The CEO of a nonprofit organization involved in pediatric hospice care expressed that despite 15 years of operation, the organization may not continue without increased funding.

The meeting also explored the pathways for referrals to pediatric hospice services. Participants noted a lack of awareness among pediatricians regarding available support services, which could hinder timely access for families in need. Suggestions were made to develop a resource toolkit for healthcare providers, aimed at improving visibility and understanding of the services available for children with serious illnesses.

Additionally, the group discussed the importance of building connections between pediatricians and hospice providers to facilitate better communication and referrals. Currently, many referrals come from palliative care teams or hospitals rather than individual physicians, indicating a gap in awareness that could be addressed through targeted outreach and education.

As the group moves forward, the focus will be on advocating for necessary funding and creating resources that enhance the support network for families navigating pediatric hospice care. The implications of these discussions are significant, as they aim to ensure that children and their families receive the comprehensive care and support they need during challenging times.