Advocates reveal New York's early intervention system in crisis with growing waitlists

During a recent Joint Legislative Budget Hearing focused on Health and Medicaid, significant concerns were raised regarding New York's Early Intervention (EI) system and the provision of behavioral health services. Stakeholders from various organizations highlighted critical issues affecting thousands of children and families across the state.

The EI system, which serves approximately 30,000 children, is reportedly at a breaking point. A 2023 report from the state controller revealed that over half of the children in the EI system did not receive their full eligible services, with 3,000 children receiving no services at all. The waiting list for services has surged to 10,000, a staggering 500% increase since 2020. The primary cause of these challenges is inadequate reimbursement rates, which have decreased by 15% over the past 29 years, while inflation has risen significantly. This has led to a shortage of providers, as many specialists are drawn to better-paying opportunities in other sectors.

Additionally, proposed cuts to telehealth rates threaten to further limit access to EI services, particularly for children in rural areas. Stakeholders urged lawmakers to address these issues urgently, emphasizing the need for increased funding and support for the EI system to ensure timely evaluations and treatments for children in need.

The hearing also addressed the ongoing challenges faced by families seeking Medicaid-funded Applied Behavior Analysis (ABA) services. Advocates expressed concern over Governor Hochul's proposed cuts to Medicaid funding for ABA, which could lead to New York having the lowest reimbursement rates in the country. Families have been waiting nearly a decade for these services, and without adequate support, many children are at risk of developing more severe behavioral issues that could lead to involvement in the child welfare and juvenile justice systems.

In a related discussion, the New York Water Safety Coalition highlighted the urgent need for drowning prevention measures, particularly for children. With drowning being a leading cause of death for young children, advocates called for increased funding for swimming lessons and awareness campaigns to address this preventable crisis.

As the state grapples with these pressing issues, stakeholders are calling for comprehensive reforms and increased funding to ensure that vulnerable children and families receive the support they need. The outcomes of this hearing could significantly impact the future of health services in New York, emphasizing the importance of timely action to address these critical community needs.