[{"_1":2,"_88":-5,"_89":-5},"loaderData",{"_3":4,"_26":27},"root",{"_5":6,"_17":10,"_18":19,"_20":21,"_22":10,"_23":-5,"_24":-5,"_25":10},"user",{"_7":8,"_9":10,"_11":10,"_12":-5,"_13":-5,"_14":15,"_16":-5},"roles",[],"isAuthenticated",false,"isPremium","planName","subscriptionStatus","featureFlags",{},"insightsBudget","isDevelopmentHost","userPreferences",{},"recaptchaSiteKey","6LcvOJcUAAAAAHsB-gPGfGktcRlKpH7OTIU_dMTD","isImpersonating","impersonation","affiliateStatus","isFreedomPortal","routes/v2/article/layout",{"_28":29,"_30":31},"notFound",true,"relatedArticles",[32,76],{"_33":34,"_35":36,"_37":38,"_39":40,"_41":42,"_43":44,"_45":46,"_47":48,"_49":50,"_51":52,"_53":54,"_55":56,"_57":58,"_59":60,"_61":62,"_63":64,"_65":66,"_67":68,"_69":70,"_71":72,"_73":74,"_75":74},"mediaId",6339755,"mediaKeyId","2260792-f7a2d395525ed406f77f228d2cbbec33","parentId",2260792,"title","Lawmakers press OHA on gaps in REALD/SOGI data for people with intellectual and developmental disabilities","audioSeconds",607,"startMs",1440470,"endMs",2047960,"viewUrl","/Search/View?dp=1&key=2260792-f7a2d395525ed406f77f228d2cbbec33&start=1440&end=2047","thumbnailUrl","https://assets.pipeline.soar.com/2260792-f7a2d395525ed406f77f228d2cbbec33/thumbnail_1440470.jpg","articleUrl","/articles/6339755/Oregon/Lawmakers-press-OHA-on-gaps-in-REALDSOGI-data-for-people-with-intellectual-and-developmental-disabilities","mediaUrl","https://secure.pipeline.soar.com/6339755-efe2f877644f78bd024e8d04fdf28abd/orig.mp4?Expires=1771122144&Signature=SCWCQJb3Yb6-vlrBS0YN-pqr3VAtQ9Nx4jCEyGktYWWsd~lxZZt3r4wvBbAwIth-NkRiEXxH0gQX82iqqC2MttO0t~JKb0ZvxuinAPTA1ImnUiGZ8bLTfXjBUPDAf~fpMAx2Zi-PgP6tMQyNehxglySJQfzp-c6HuWhQ-NIfALrAoAQ3gkzVjcDqfKxd7bK6WRJVToG~cmKXNtjSLFl~~ZeAIcGh2gsC1J2L4f3pW0hQ1MILbbqtxQZPAjaVB9vxLb0gDQRLGDsoafk6fckTMfJm2ozq4lUK6aBPbXqB3z4SOE8eAJAH7uwS0TCM2oChYRgnQe~8QQVo~Iz41j928g__&Key-Pair-Id=KUT5TJCACFTXG","author","Oregon Legislature","date","2025-02-11T00:00:00Z","article","SALEM, Ore. — Lawmakers at a Feb. 11 joint Subcommittee on Human Services hearing pressed Oregon Health Authority staff about gaps in REALD (race, ethnicity, language, disability) and SOGI data collection and the ability to identify people with intellectual and developmental disabilities in statewide data systems.

Representative Nelson asked how REALD and SOGI data have been used to reduce racial disparities. Claire Pierce Scribe, HPA director, said the equity and inclusion division oversees REALD and SOGI and that integrating those data with a future state-based marketplace will enable more targeted outreach. She added that the data allow the agency to see “where we should focus” and to use dashboards and performance metrics to promote transparency and targeted interventions.

Senator Gelser raised concerns that during the pandemic it was “very difficult to distinguish people with disabilities,” particularly people with intellectual and developmental disabilities (IDD), who often were grouped with other conditions such as dementia in available datasets. The senator said that IDD populations — especially those in congregate care settings — experienced elevated death rates and remain “invisible” in some presentations and strategic planning materials.

Dave Baden, deputy director for policy and programs, told the committee the state had made progress in pandemic vaccine distribution by using more disaggregated REALD data and cited a specific example: “There was this very specific example about Pacific Islanders on the coast. We were not doing as well of figuring out access spots that made sense. That got elevated because we have the data.” Baden and Pierce Scribe both said rules and standards for REALD data exist but that connecting all datasets — including claims, public health records and congregate care reporting — is ongoing work.

OHA said it will follow up with specific information. Pierce Scribe said the equity and inclusion division will present in a subsequent meeting and that Alfonso Ramirez, who works in that office, would address details about repository development and dataset integrations. The agency committed to returning with more precise status on what data sources have been integrated and where gaps remain.

Why it matters: Legislators said identifying people with IDD in administrative and public health data is essential for targeted outreach, service planning and monitoring outcomes. Committee members described long‑standing frustration that the population remains undercounted in many reports, limiting the state’s ability to measure disparities and provide tailored supports.

No formal action was taken during the informational meeting; OHA staff said they would provide follow-up information on the REALD/SOGI repository and the status of IDD data integration.","mediaType","Video","parentTitle","Joint Committee On Ways and Means Subcommittee On Human Services 02/11/2025 (PM)","oneSentenceSummary","During the Feb. 11 informational meeting, legislators pressed OHA staff about the integration of REALD and SOGI data and whether people with intellectual and developmental disabilities (IDD) are identifiable and tracked in those datasets; OHA said rules are in place but data integration is incomplete and staff will follow up.","taxTitle","Human Services, Ways and Means, Joint, Committees, Legislative, Oregon","taxId",18635,"location","Oregon","headline","","shortSummary",{"_33":77,"_35":36,"_37":38,"_39":78,"_41":79,"_43":80,"_45":81,"_47":82,"_49":83,"_51":84,"_53":85,"_55":56,"_57":58,"_59":86,"_61":62,"_63":64,"_65":87,"_67":68,"_69":70,"_71":72,"_73":74,"_75":74},6339760,"Oregon Health Authority outlines Health Policy & Analytics priorities, requests funding for market oversight and state-based marketplace",4224,92080,4317070,"/Search/View?dp=1&key=2260792-f7a2d395525ed406f77f228d2cbbec33&start=92&end=4317","https://assets.pipeline.soar.com/2260792-f7a2d395525ed406f77f228d2cbbec33/thumbnail_92080.jpg","/articles/6339760/Oregon/Oregon-Health-Authority-outlines-Health-Policy-Analytics-priorities-requests-funding-for-market-oversight-and-state-based-marketplace","https://secure.pipeline.soar.com/6339760-cac4455eda5875b1b3a60201edc72d05/orig.mp4?Expires=1771122144&Signature=C0juS1Q9YOAboh2XRiSzUPL24kSLVCoCxdsUpmzMzgqUw1KThB3xcjaNaebRUIrgA4B6NuKyDiGroC5leg5nizMjyWtYr4ryhi048FY9HfW34YVgxVCd7AtenXKZWhKImckN7~9wOW65vH1rvb2~tFrZ-gYaQkSkhJB1H2NMdLBLpHiimVfEM3itStK37-UmGluuhn9n0ZKxC3JG1yYDPNZQvFUaqp62ffTLj3nkGD5IMhF~ACFaklUBPR8eIqfsPj6bYjcIYwopQZ58jEBfPrrGsMMNldDmoTc~CUCI4a8kuV1cMpTPyd1DAbfXpJy2794z~SmbsGybXn5yiIRUag__&Key-Pair-Id=KUT5TJCACFTXG","SALEM, Ore. — At a Feb. 11 joint Subcommittee on Human Services informational meeting on House Bill 5025, Claire Pierce Scribe, director of the Health Policy and Analytics (HPA) Division at the Oregon Health Authority (OHA), outlined HPA’s role in data-driven health policy, affordability efforts and workforce programs and presented two budget requests: ongoing support for the Healthcare Market Oversight program and funding to implement a state-based insurance marketplace.

HPA, Pierce Scribe said, works “to help achieve better health, better health outcomes, and lower cost for the state of Oregon.” The division supports data collection and analysis, policy design and program implementation across Medicaid, commercial markets, and state benefits programs, she told the subcommittee.

Why it matters: HPA supplies data and policy work used to set Medicaid rates, oversee coordinated care organizations (CCOs), measure statewide cost growth and design new coverage options. The division’s presentation tied its budget requests directly to OHA goals on coverage, affordability and equity and emphasized the use of data to target interventions and monitor cost drivers.

HPA’s examples and numbers included: an interactive Medicaid enrollment dashboard and CCO metrics dashboards; the All-Payer All-Claims database for cost and utilization transparency; the Patient-Centered Primary Care Home program, which HPA said has certified more than 600 practices (about three-quarters of Oregon’s primary care practices) and covers 94% of CCO members; and support for the Public Employees’ Benefit Board (PEBB) and Oregon Educator Benefit Board (OEBB), which provide benefits to roughly 300,000 state employees and dependents. Pierce Scribe said HPA’s work contributed to a record insured rate in Oregon — an estimated 97% — and that the OHP Bridge program (launched under House Bill 4035) now covers about 30,000 people who previously lacked coverage.

HPA highlighted two budget priority investment requests included in the governor’s budget package: POP 407 to fund the Healthcare Market Oversight (HCMO) program and POP 424 to complete the state-based eligibility and enrollment platform.

- Healthcare Market Oversight (POP 407): HPA described HCMO as the program that reviews proposed health care business transactions and sets conditions intended to protect cost, access, quality and equity. Pierce Scribe said transaction fees do not cover the full operating cost as transaction volume and legal complexity have increased; the budget request seeks general funds to support staff positions, community engagement and legal costs. HPA staff estimated the program currently uses roughly 10 full-time staff and supplements reviews with outside advisors for larger transactions, Claire Pierce Scribe said. HPA warned that without sustained funding the state’s ability to review and condition transactions could be limited.

- State-based marketplace implementation (POP 424): Under Senate Bill 972 (2023), Oregon must move from the federally facilitated marketplace to a state-based marketplace; HPA said it is on track for a Nov. 1, 2026 transition for plan year 2027. Pierce Scribe told the committee a state-based marketplace will provide real‑time demographic data that the federal platform does not, enabling more targeted outreach and better integration with REALD (race, ethnicity, language, disability) and SOGI (sexual orientation and gender identity) data collection.

HPA also laid out ongoing affordability work: the Cost Growth Target program, which HPA said is set at 3.4% annually and measures statewide health spending trends across Medicaid, Medicare and commercial markets; value‑based payment efforts to move away from fee‑for‑service; and programs that require CCOs to reinvest in social and health‑related services. The division noted workforce investments: a biennial workforce assessment and incentive programs that HPA said have provided incentives to more than 7,700 recipients since 2018.

Committee members asked technical and policy questions. Representative Pham asked whether wage increases are treated as acceptable reasons for cost growth; Pierce Scribe said the Cost Growth Target program considers wage growth and other acceptable factors and the annual report provides additional granularity. Representative Deal raised concerns about provider costs outpacing the target; Pierce Scribe reiterated that the program seeks to identify cost drivers and use transparency and multi‑stakeholder efforts to address them.

HPA staff also described the division’s funding mix. The governor’s request for HPA includes a mix of federal Medicaid reimbursement, other restricted fees (for example, marketplace and benefit board fees), limited lottery funds and a general fund request (HPA said general fund represents about 32% of its request). Pierce Scribe noted some revenue is restricted to specific purposes and cannot be flexibly used across programs.

No formal action or votes occurred during the informational meeting; committee members requested follow‑up on several items and HPA staff said they would provide additional information. The subcommittee adjourned after questions and comments.","At a Feb. 11 informational session on House Bill 5025, the Oregon Health Authority’s Health Policy and Analytics Division described data, affordability and workforce initiatives and requested funding for the Healthcare Market Oversight program and a state-based marketplace implementation.","actionData","errors"]

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Lawmakers press OHA on gaps in REALD/SOGI data for people with intellectual and developmental disabilities

Oregon Health Authority outlines Health Policy & Analytics priorities, requests funding for market oversight and state-based marketplace