The Endometriosis Working Group convened on February 10, 2025, under the Human Services Committee in Connecticut to address the pressing issues surrounding endometriosis, a chronic condition affecting approximately 1 in 10 individuals globally. The meeting highlighted the significant economic burden of the disease, estimated at $78 billion annually in the United States alone, and emphasized the urgent need for increased awareness and research.
Key discussions focused on the lengthy diagnosis process, which averages between 7 to 10 years, often beginning at around 27 years of age. The group underscored the debilitating nature of endometriosis, describing it as a systemic disease with numerous unmet needs. Participants noted that the condition has historically been underfunded and under-researched, leading to gaps in understanding its etiology and the development of effective treatments.
The meeting called for a multi-faceted approach to tackle these challenges. This includes the need for improved non-invasive diagnostic methods, better treatment options, and strategies to prevent both the onset and recurrence of endometriosis. The group recognized that addressing these issues is crucial for enhancing the quality of life for those affected by the disease.
In conclusion, the Endometriosis Working Group's discussions underscored the importance of prioritizing research and funding to better understand and manage endometriosis, aiming to alleviate the burden on individuals and the healthcare system. The group plans to continue its efforts to advocate for necessary changes and improvements in the management of this chronic condition.