Georgia families urge action as waiting list for developmental disability waivers grows to 7916

In a recent government meeting focused on appropriations for human resources, significant discussions emerged regarding the challenges faced by Georgians with developmental disabilities in accessing necessary support services. The meeting highlighted the critical role of NOW (New Opportunities Waiver) and COMP (Comprehensive Supports Waiver) waivers, which enable individuals to receive care in their homes and communities rather than institutional settings.

As of the latest update, 13,711 Georgians are currently receiving these waivers, while 7,916 individuals remain on the waiting list. This stark contrast underscores the high eligibility standards for these waivers, which are only granted to those with significant disabilities. The meeting emphasized that while there are nearly a quarter of a million families in Georgia supporting someone with a developmental disability, the number of individuals receiving waivers is disproportionately low.

A key point of discussion was the ongoing efforts to address the waiting list for waivers. The Georgia Council on Developmental Disabilities (GCDD) participated in a process led by the Department of Behavioral Health and Developmental Disabilities (DBHDD) and the consulting group Guidehouse. This initiative included public listening sessions where families shared their experiences navigating the waiver application process. Many families reported facing arduous challenges, with some stating that they were advised to wait until they reached a crisis before receiving assistance.

Personal testimonies from families illustrated the emotional and logistical burdens they face. One mother recounted her struggle to secure a waiver for her son, who was denied multiple times before she sought legal action. Another family member described the overwhelming pressure of caring for a loved one without adequate state support, highlighting the urgent need for reform in the waiver system.

The meeting also revealed that Georgia's waiting list for waivers is significantly larger than those in neighboring states, prompting calls for increased funding. The GCDD proposed adding 1,000 new waivers in the amended fiscal 2025 budget, which would require approximately $27 million. Additionally, they recommended 1,400 new waivers for the fiscal 2026 budget, aiming to address the needs of over 2,400 individuals who have recently graduated from high school and require services.

The discussions at this meeting not only shed light on the systemic issues within Georgia's waiver program but also emphasized the urgent need for legislative action to support families in crisis. As the state grapples with these challenges, the voices of those affected remain crucial in shaping policies that can provide timely and effective support for individuals with developmental disabilities.